Comments on: Listening to parents at AutismOne

By: autblog

autblog — Sat, 10 Jul 2010 22:40:25 +0000

Very interesting. Teri Arranga is, apparently, a liar.

By: Chris

Chris — Wed, 07 Jul 2010 02:38:59 +0000

You might be interested in this opinion of Ms. Arranga.

By: autblog

autblog — Mon, 05 Jul 2010 14:20:12 +0000

Can you give examples? Or are you just repeating hearsay? I’d not heard that reporters were intentionally harassing and disrupting speakers. You’re talking about the 2009 conference, right?

By: Julie

Julie — Mon, 05 Jul 2010 03:12:45 +0000

No, not that I am aware of. Just press harrassing speakers and being disruptive during some of the talks.

By: autblog

autblog — Sun, 20 Jun 2010 03:10:06 +0000

Julie, are you saying that a reporter was expelled from AutOne last year (2009)?

By: Julie

Julie — Fri, 18 Jun 2010 12:44:28 +0000

I am a bio-med mom with a girl with the dual diagnosis of down syndrome and autism, and I attended one day of the conference. When I read about this situation on your blog, I thought, “Great. What happened, and why were these guys kicked out. It makes us look bad.” But one of the regular volunteers explained that last year, there were reporters being very disruptive and harrassing the lecuturers. They only attended the biomed sessions and were not there to present a favorable side to things, it was bad. This year was a reaction to that, to protect the attendees and guarantee that that would not happen again.
I understand that you think we don’t want to be heard, but we do. At least all of those who I speak with do. And just so you know, biomed DOES work. Even my daughter’s teachers and therapists have said that the drastic difference in her HAD to be from the supplements and special diet that we implemented in her. It may not have a double blind, placebo controlled study behind it, but it works.

By: kara-noel

kara-noel — Sat, 05 Jun 2010 19:42:52 +0000

I’m popping around blogs because my niece was just diagnosed with AS (at 12).
So interesting about the kicking out of the conference… you are right if they can’t listen nothing will be resolved!

By: Graphictruth

Graphictruth — Wed, 02 Jun 2010 00:48:42 +0000

When you make it clear that nothing less than uncritical, positive coverage is what is required to gain a press pass – the reputable press will not be bothered to attend.

By the way, publicly embarrassing a state employee? In a political machine town like Chicago? Brilliant.

By: David N. Brown

David N. Brown — Tue, 01 Jun 2010 17:41:00 +0000

Ejecting people could serve to reinforce paranoia among anti-vaxxers. Then again, it could also serve as a means to discourage dissent by fellow “anti-vaxxers”. In any event, I suspect it will have made a poor impression even on many who favor anti-vax views.

Somewhat offtrack, but does anyone have an idea how many people were at AutOne?

By: Liz Ditz

Liz Ditz — Sun, 30 May 2010 17:06:44 +0000

It seems to me that the AutismOne organization made a tremendous PR blunder by allowing the California Department of Public Health staffer and Ullberg to register and then evicting them. From a reputational point of view, it would have been far better to refuse their registrations.

I wonder what the payoff was for accepting the registrations then evicting them? Some sort of theater for the attendees? See, we protect your safety by removing these dangerous dissidents! . I don’t know.